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Becoming a Research Participant

If you are a person on the autism spectrum, or a family with a member on the spectrum, you can make a valuable contribution to unravelling the mysteries of autism by helping the researchers.

 

What is Research?

A research project might be a large, international project seeking to establish a cause, or locate a gene, or trial a specific treatment.Or it might be a one year undergraduate student project, or a three-year doctoral project. Research projects may be about medical issues, education, causes, treatments, therapies, practices or drug trials.

When the research project is finished, the results are presented by the researcher(s) at conferences and published in journals. The journals are ‘peer-reviewed’ which means that they have been evaluated by other researchers who have expertise, for accuracy and quality.

Sometimes, research findings will be in the news and will receive a lot of attention. At other times, research findings don’t make the headlines, but each piece of research can be very important as a piece of the overall knowledge.

One outcome of honours and post-graduate student research is its role in developing the next generation of professionals. As more people do research into autism, this knowledge is carried into their working life and has a direct impact on the service system, with more practitioners who have autism expertise.

 

Individual and family membership

Why am I Important?

The most important component of autism research is you – the person on the spectrum or the parent/carer of a person on the spectrum. Without your help, there are no research findings, and no change in our scientific knowledge of the autism spectrum.

The research participant database is kept securely by Amaze and is not released to any third party. As a research participant, you will be asked to provide basic information about yourself and/or your family, such as date of birth, postcode, diagnosis, verbal ability, intellectual ability, gender, details of siblings.

Researchers contact Amaze with details of their studies and some details on people they need help from – for example they may be studying adult females, or children under 5. We check the database and email the study details to the people in the database who fit the requirements. You receive the details, decide if you are interested and contact the researcher.

  • The database has around 400 people on it
  • It is voluntary and you can ask to be removed wherever you wish by contacting us
  • Being on the database does not mean you have to take part in any study
  • If you take part in a study, you can drop out if you wish

Many people have taken part in research and thanks to them, our knowledge continues to grow. Your participation today will help people on the autism spectrum in the future.

 

What sort of things would I have to do?

  • You might be interviewed by the researcher
  • You might be asked to fill in a survey
  • You might be asked to do some activities, perhaps over a period of time
  • You might be part of a group
  • You might take part in just one session, or it could be a number of sessions

 

To go ahead, please fill in the form below

Find out more about how Amaze supports autism research
Find out about research projects needing participants

 

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Updated: 04-06-16